Healthcare access and burden of care for patients with Lyme disease: A large United States survey

Publication year: 2011
Source: Health Policy, In Press, Corrected Proof, Available online 14 June 2011

Lorraine, Johnson , Alexandra, Aylward , Raphael B., Stricker

 Objective: To evaluate the challenges faced by Lyme disease patients in obtaining adequate healthcare. Methods: A web-based survey conducted over nine months was analyzed for the study. The survey focused on medical status, access to healthcare, and burden of illness. For inclusion in the study, survey respondents had to reside in the United States, be more than 10 years old, and have clinically diagnosed Lyme disease with chronic symptoms and positive laboratory testing. Results: Responses from 2424 patients were included in the study. Half of the respondents reported seeing at least seven physicians before the diagnosis of Lyme disease was made. Nearly half had Lyme…